We are all parents of children with Angelman syndrome, and we’re standing by to answer questions and assist you. Please follow these steps:
1. REGISTER WITH FAST
Receive access to all of our resources, and stay informed about research, clinical trials and events. There is no membership fee or commitment.
2. TALK TO PAULA
Paula Evans founded FAST in 2008 after doctors told her there was no hope for her daughter who has AS. She likely can answer any question you have.
3. EDUCATE YOURSELF
Browse our website, blog, and social media sites to arm yourself with information. Learn more about Angelman syndrome, your child’s diagnosis, questions to ask your doctor, therapies and much more.
4. MEET OTHER PARENTS
FAST was founded by parents, and it is the place to find a strong community who will listen, offer support and share advice. Your FAST friends will be able to truly understand what you’re going through.
You Are Not Alone
The feeling of isolation at the time of diagnosis is almost universal among parents. Sometimes, the best way to overcome this feeling and gain understanding is to hear from those who’ve been there before. Connecting with others who share the same rare experience with Angelman syndrome can be helpful when you’re ready. In the meantime, we asked parents of children with Angelman syndrome to share what they wish they had been told as a parent whose child was just diagnosed.
Get to know our foundation, our people, and our purpose.
Learn about the syndrome, it’s causes, testing and diagnosis.
Research & Impact
Check out the progress our scientists are making.