The ORCA (Observer-Reported Communication Ability) outcome measure
In 2018, FAST funded Dr. Bryce Reeve of Duke University to create a novel communication measurement tool as an outcome measure assessment of caregiver observ
FAST Awards Drs. Silverman (UC-Davis) and Duis (Children’s Hospital Colorado) Grant to Study Gait as an Outcome Measure for Angelman Syndrome
Movement disorders affect nearly all individuals with Angelman syndrome (AS), with the most common concerns being spasticity, ataxia (as observed in the majo
FAST update on the impact of Covid-19
While the world as we know it has changed, abruptly and dramatically, we at FAST want you to know that we are here and we continue to move forward in our mis
FAST funds pioneering infrastructure grant
FAST is thrilled to announce a grant to our continued partners and renowned scientists dedicated to advancing therapeutics for Angelman syndrome.
Festival de música solidario a beneficio de ASA y FAST
Solo faltan 2 días para que los amantes del flamenco podamos disfrutar de un concierto solidario en el que el Síndrome de Angelman será protagonista. Todo
Programa de Terapia Genética (Univ. de Pensilvania)
FAST firma acuerdo con la Universidad de Pensilvania para impulsar estudios preclínicos de terapia génica hasta fase de “nuevo fármaco en investigación
Importante subvención para edición genética (NIH)
Los NIH anuncian una importante subvención para una plataforma de edición genética a la Universidad de Yale, la Fundación para la Terapéutica del Síndr
Aprende más sobre la escala ORCA
Esta semana destacamos dos nuevas publicaciones financiadas por FAST sobre ORCA (Observer-Reportes Communication Ability), la escala para medir la &nbs
