Recaudación de fondospara curar el síndrome de Angelman
EMPIEZA A RECAUDAR FONDOS¡Únete al equipo de Cure Angelman Now (CAN) hoy!
Los fondos que se recaudan van directamente a la investigación y los avances del síndrome de Angelman. Crea una página de recaudación de fondos en honor a tu ser querido con síndrome de Angelman. Gracias por unirte a nuestra búsqueda para curar el síndrome de Angelman.
Contigo, lograremos la cura.
APOYA UNA PÁGINA DE CAN DONANDO FONDOS
FAST no estaría donde está hoy sin los esfuerzos dedicados e incansables de nuestros donantes. ¡Nuestra comunidad es realmente asombrosa! Su apoyo tiene un impacto significativo en llevar la ciencia actual a los tratamientos del mañana.
TÚ ERES LA CURA
¿Por qué recaudar fondos?
Los fondos que recaudes respaldarán la investigación y los avances que brindan tratamientos que cambian la vida de nuestros seres queridos con síndrome de Angelman. FAST no se detendrá hasta que todas las edades y genotipos del síndrome de Angelman tengan un tratamiento significativo y exitoso. FAST continúa invirtiendo en nuevas oportunidades de investigación clave. ¡Para invertir, necesitamos que sigas recaudando fondos!
¡Tus donaciones significan todo un mundo para nosotros!
REGISTRA TU EVENTO DE RECAUDACIÓN DE FONDOS
2020 Top Fundraisers
Grace – John Schlueter – Team Grace
William – Meghan Edberg – Will.i.CAN | Let’s #KickAS Together for William
Ben – Lauren Hoffer – Ben’s Believers
Orion – Amelia Beatty – Orion2020
Michelle – Roy Azout – Move it for Michi
Lilly – Jaci Mouch – Love like Lilly
Elianna Grace – Alyssa Osborne – Elianna Grace
Luke – Sara Robinson – Luke’s Lions
CAN es Global
La campaña de recaudación de fondos Cure Angelman Now (CAN) de FAST es un esfuerzo global. FAST te anima a apoyar los esfuerzos de recaudación de fondos en tu país respectivo. Sin embargo, si tu país no está representado en la lista a continuación, sería un honor si optaras por recaudar fondos con nosotros.
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¡Vamos a ello!
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¡Vamos a ello!
- Fundraising Tips
- Events Calendar
- 2020 CAN Rules
- Neep Help?
Your easiest first donation will come from you. Decide what amount you would like to contribute (no amount is too small), and leave a special comment to your loved one with AS on your CAN page. Remember, it is easier to ask others if you have already sponsored yourself.
You and your family are the most powerful reason why someone would contribute to FAST. Donors are motivated by a passion for a cause or compassion for people they have come to know.
Share why donating will make finding a cure possible. FAST’s scientists know exactly what causes Angelman syndrome. They have cured the symptoms of the disorder in mice using multiple strategies. A cure is no longer a matter of if, but when. To bring meaningful treatments and therapeutics into human clinical trials, we need the support of our family members and friends to help us raise $1 million. The only thing standing between people with Angelman syndrome and life-changing treatments is financial support for our scientists.
You can’t raise money if you don’t ask. Everyday people make substantial change, and every dollar counts. Start by making a list of the people, employers, businesses and organizations you know, and discover whether they wish to contribute in some way or not. Don’t get discouraged if they are tied to another commitment, it happens.
When you make an ask, be direct. Direct them to your CAN page URL or the FAST website so that they know how to contribute.
Be direct and suggest an amount. People are more likely to give when they know what is expected of them and don’t be afraid of asking too much, they will self adjust. You will find that many people want to help you. When asking for donations, be relaxed. Show your enthusiasm and be authentic. You’ll do best with the style of solicitation that reflects your personality.
Remember to thank your donors, and then take that opportunity to give them more information. If you send a card, tell them of the progress your loved one is making, or of any news on the AS research front, and then direct them to the FAST website and Facebook page again so they can follow FAST’s progress themselves.
We’re bringing life-changing treatments to people with Angelman syndrome so they can speak, walk, sleep, and live seizure-free. It’s a mammoth task that will require like-sized efforts. Continue. If something worked well, do it again and improve upon it. If something did not come off as you had hoped, try something else. You have a compelling reason for perseverance, and people will understand that. Use your passion to spark that in the people around you. You will be amazed.
One of the smartest ways to increase your donation to FAST is through a Corporate Matching Gift Program. Many companies, and some individuals, will match your donation dollar for dollar, which doubles your charitable donation power. Some match even more. Johnson & Johnson, for example, matches 2:1 and Grainger contributes 3:1.
You can find a list of companies with matching gift programs here (LINK). If you don’t see your employer on the list, check with your company’s Human Resources office to see if they offer gift matching. If they don’t, ask them to start one.
To add FAST to their list of charities, have your Human Resources office contact FAST via phone (630.852.FAST), fax (630.852.3270) or email (info@CureAngelman.org). FAST is a 501(c)(3) nonprofit.
We are here to support you and cheer you on. Thank you for not being a bystander in the journey to cure AS. You have opportunities to win prizes and incentives through our CAN Community Challenge, click here to learn more. Also, we look forward to celebrating you at the annual FAST Summit & Gala.
Each year FAST’s community of fundraisers organize creative and successful events that propel our mission to #CureAngelmanNOW. Fundraising events take place all over the country and the world. We can assure you that there is something for everyone. Find an event near you.
2021 Cure Angelman Now Rules
These are the official rules of the contest/sweepstakes (“Rules”).
The Foundation for Angelman Syndrome Therapeutics (“FAST”) has established a promotion to bolster interest and creativity in the area of fundraising which includes a contest and sweepstakes (the “Fundraising Contest”). The Fundraising Contest is an international fundraising campaign to show support for Angelman syndrome research and to raise money for FAST, a nonprofit organization that provides funding for Angelman syndrome research. The Fundraising Contest is (1) a challenge in which the top eight (8) entrants that raise the most money for FAST will receive a prize as described below, and (2) a sweepstakes in which two (2) entrants will be randomly selected to receive a prize as described below. A total of ten (10) grand prizes will be awarded, as well as the additional gifts set forth below. Other international FAST entities are also participating in the Cure Angelman Now (CAN) campaign in their respective countries and with their own fundraising platforms. They are not participating in this Fundraising Contest nor are funds raised on the international FAST fundraising platforms eligible for this contest or the prize eligibility herein.
NO DONATION OR PAYMENT OF ANY KIND NECESSARY TO ENTER OR WIN.
To enter the Fundraising Contest, a fundraising page must be established by an individual on the FAST website located at www.cureangelman.org (“Website”) to raise donations for FAST. Donations will be made directly to FAST through the entrant’s fundraising page on the Website. Teams or groups must identify one entrant within the Team or Group to qualify for the Grand Prize. By establishing a fundraising page, the individual entrant (“Entrant”) accepts these FAST Fundraising Official Rules.
The grand prize consists of a paid trip for the winner and one (1) guest to Los Angeles, California for three (3) days and two (2) nights, including hotel, domestic economy airfare, and attendance at a dinner with Colin Farrell (“Prize”) OR your choice of (a) a Samsung Frame TV (Approximate Prize Value [“APV”] $1,500 plus shipping & taxes) or (b) Side by Side Trike (APV $1,559 plus shipping & taxes)
FAST may add additional prizes throughout the Fundraising Contest in its sole discretion.
Legal residents of the fifty (50) states of the United States of America and the District of Columbia and most countries around the world who are twenty-one (21) or older at the time of entry are eligible to enter. All federal, state, and local laws and regulations apply. Residents of countries on the United States list of embargoed countries and countries where local laws prohibit entry into sweepstakes or contests or limit the prize value that a resident may accept are not eligible to enter. Employees and board members of FAST, all affiliates of FAST (including international FAST affiliate organizations), the prize providers, and members of their immediate families are not eligible to enter or win. FAST, in its sole and absolute discretion, shall make all determinations with respect to the eligibility of all Entrants.
The Fundraising Contest is void where prohibited or restricted by law.
HOW TO ENTER:
To enter the Fundraising Contest, Entrant must establish a web page by following the instructions on the Website for the purpose of raising donations to FAST or submit an entry card as described below. To be an Entrant in the Fundraising Contest, the fundraising page must be created during the Promotion Period (defined below). By creating a page, Entrant agrees to these Official Rules and warrants eligibility to enter the Fundraising Contest.
Alternate Method of Entry: Mail a postcard or 3” x 5” index card with name, mailing address, and daytime telephone number, postmarked by October 1, 2021, to: FAST Sweepstakes, P.O. Box 608, Downers Grove, IL 60515. Entrants may submit one (1) entry. FAST assumes no responsibility for lost, late, or incomplete entries.
Entries may be disqualified at any time for non-compliance with these Official Rules. FAST, in its sole and absolute discretion, makes the final determination as to eligibility.
PRIZES and APPROXIMATE RETAIL VALUE:Each grand prize winner will receive either:
- A trip for the winner and one (1) guest to Los Angeles, California, for three (3) days and two (2) nights, including accommodations at a four-star hotel at a hotel selected by FAST (APV $1,000), domestic economy airfare on an airline selected by FAST (APV TBD, booked by FAST), and attendance at a dinner with Colin Farrell and select other attendees at a location to be determined by FAST (APV $500) (“Prize”). The total APV of each grand prize dinner award is One Thousand Seven Hundred U.S. Dollars ($1,700), OR
- A Samsung Frame TV (APV is One Thousand Five Hundred U.S. Dollars [$1,500] plus shipping & taxes) OR Side by Side Trike (APV is One Thousand Five Hundred Fifty-Nine US Dollars [$1,559] plus shipping & taxes).
WINNERS and NOTIFICATION:
The Prize winners will be identified as follows:
Eight (8) Entrants who raise the most money (in compliance with these Rules) as verified by the total shown on the Entrant’s fundraising page by October 15, 2021, at midnight/12:00 AM (CDT) will be winners.
Two (2) Entrants will be randomly selected by drawing from all eligible entries. The drawing will be held on October 15, 2021, at 12:00 PM (CDT). Collectively, all ten (10) winners shall be referred to as Prizewinners
All Prizewinners will be notified by email by no later than October 25, 2021, and must respond via email within seven (7) days from notification or FAST reserves the right to choose an alternate Prizewinner. The Prizewinners will be announced no later than November 1, 2021, on the Website.
For names of the Prizewinners, please email firstname.lastname@example.org with a subject line “Fundraising Contest Winners.” For a copy of the Official Fundraising Contest Rules, please email with a subject line “Fundraising Contest Rules.”
The following gifts will be awarded for the indicated amounts raised by each Entrant. For clarity, Entrants shall be entitled to one gift only (for example, an Entrant raising $1000 would be entitled to the backpack, or could opt for the tumbler, but would not receive both):
$500 – FAST tumbler (APV $15).
$1000 – FAST backpack (APV $40).
$2,500 – Apple Air pods Pro (APV $200) or Echo Studio Smart Speaker (APV $200).
$5,000 –Two complimentary 2021 FAST Gala tickets, celebrity meet & greet, and two (2) night’s complimentary lodging at the Hyatt Regency Chicago (December 3-4, 2021), (APV $650) OR your choice of either:
- Apple iPad, wifi, 128 GB (APV $409 plus shipping & taxes); OR
- Yeti Tundra Haul Hard Cooler (APV $399 plus shipping & taxes); OR
- Jungle JumpaRoo (APV $399 plus shipping & taxes).
$10,000 –Two complimentary 2021 FAST Gala tickets, celebrity meet & greet with Colin Farrell, economy airfare (up to $400 total), two (2) nights complimentary lodging at the Hyatt Regency Chicago (December 3-4, 2021) (APV $1,050). OR your choice of either:
- Apple iPad Pro, 11 inch, wifi, 128 GB (APV $749 plus shipping & taxes) AND FAST Swag Box to include 2 Hoodies, 1 Tote bag, 2 Mugs and 1 Magnet, (APV $112 plus shipping & taxes); or
- Pillow Sac to include pillow and cover (APV $875 plus shipping & taxes).
An Entrant who is eligible for a Gift must sign a release as described herein.
Selection of Gifts and Prizes:
Except as set forth herein, all such elections shall be final and binding on the Entrant. If an Entrant fails to make such election with such timeframe, FAST may choose which prize or Gift to grant to such Entrant or grant no prize at all in its sole discretion. An Entrant may waive his/her right to receive a prize or Gift. Any Entrant who accepts a prize or Gift will be issued an IRS Form 1099, if applicable. Under no circumstances will FAST be required to pay the APV for any prize or Gift to any Entrant.
Prizes and Gifts are non-transferrable, non-exchangeable, and non-refundable, and must be accepted by the Entrant as awarded. FAST reserves the right, in its sole discretion, to substitute a prize or Gift for one of equal or greater value if any designated prize or Gift should become unavailable for any reason, including specifically unavailability due to any public health regulations or restrictions.
ODDS OF WINNING:The odds of winning a Prize in the Fundraising Contest depend on the number of eligible Entrants received during the Entry Period and the quality of the Entrants’ fundraising pages.
REPRESENTATIONS AND WARRANTIES; INDEMNIFICATION; RELEASE:
Each Entrant who accepts any prize or Gift will sign a release which (1) grants FAST permission to use his/her name, voice and likeness on all FAST advertising and promotional materials and for publicity purposes, in any form of media, including but not limited to the Website, Facebook, and Twitter and (2) releases, indemnifies, defends, and holds harmless FAST and its affiliates, including promotional sponsors, from any action, liability, claims, costs, injuries, losses, damages of any kind or proceedings arising out of or in conjunction with your participation in the Fundraising Contest, the use of the Internet or FAST’s website, the acceptance, or possession or use of the Prize awarded or any part thereof, as well as claims based on publicity rights, defamation, or invasion of privacy. All federal, state, and local taxes and all other costs and expenses associated with acceptance and use of any prize or Gift are the Entrant’s sole responsibility. Entrant shall also indemnify, defend, and hold FAST and its promotion sponsors harmless from any losses (including reasonable attorneys’ fees) arising from any third-party action asserting a breach by you of any representation, warranty, or obligation in these Official Rules.
Entrant represents and warrants that: (a) he/she is eligible to enter the Fundraising Contest; (b) he/she has complied and will comply with these Official Rules in connection with participation in the Fundraising Contest and the Entry complies with all of the requirements of all sections.
By participating in this Fundraising Contest, Entrant agrees to be bound by these Rules.
FAST reserves the right in its sole discretion to disqualify any Entrant it finds to be attempting to tamper with or undermine the entry process and/or the legitimate operation of the Fundraising Contest, or to act in an unsportsmanlike or disruptive manner or with the intent to annoy, abuse, threaten, or harass any other person or acts in such a manner that is detrimental to FAST.
The Fundraising Contest is governed by, and construed in accordance with, the laws of the State of Illinois without giving effect to any choice of law or conflict of law rules, and Entrant consents to the exclusive jurisdiction and venue of the federal, state, and local courts located in Cook County, Illinois in connection with any claim, dispute, action, or proceeding arising from or related to the Fundraising Contest.
Entrant hereby waives any rights to a trial by jury in any matter arising from or pertaining to participation in the Fundraising Contest.
Further, in any such dispute, under no circumstances will Entrants be permitted to obtain awards for, and each participant hereby waives all rights to claim punitive, incidental, or consequential damages, including attorneys’ fees, and participants further waive all rights to have damages multiplied or increased.
Entrant agrees to release all rights to bring any claim, action or proceeding against the FAST, further covenants not to sue FAST, and hereby acknowledges that FAST has not made nor is in any manner responsible or liable for any warranty, representation, or guarantee – express or implied, in fact or in law – relative to the Fundraising Contest or the Prize.
IF YOU ARE A CALIFORNIA RESIDENT, YOU WAIVE ANY AND ALL RIGHTS UNDER SECTION 1542 OF THE CIVIL CODE OF THE STATE OF CALIFORNIA, WHICH PROVIDES AS FOLLOWS: “A GENERAL RELEASE DOES NOT EXTEND TO CLAIMS THAT THE CREDITOR OR RELEASING PARTY DOES NOT KNOW OR SUSPECT TO EXIST IN HIS OR HER FAVOR AT THE TIME OF EXECUTING THE RELEASE AND THAT, IF KNOWN BY HIM OR HER, WOULD HAVE MATERIALLY AFFECTED HIS OR HER SETTLEMENT WITH THE DEBTOR OR RELEASED PARTY.” You expressly waive and release any right or benefit which you have or may have under Section 1542 of the Civil Code of the State of California, to the full extent that you may waive all such rights and benefits pertaining to the matters released here. In connection with such waiver and relinquishment, you acknowledge that you are aware that you may hereafter discover claims presently unknown or unsuspected, or facts in addition to or different from those which you now know or believe to be true, with respect to the matters released herein; nevertheless, it is your intention through this release to fully and finally and forever settle and release all such matters and claims relative thereto, which do not exist, may exist, or heretofore have existed between yourself and FAST or FAST’s promotion sponsors. The release herein given shall be and remain in effect as a full and complete release of such claims and matters notwithstanding the discovery or existence of any such additional or different claims or facts relative thereto.
RULES CHANGES:FAST reserves the right to change the Fundraising Contest Official Rules at any time and without notice to Entrants. In the event that (1) with respect to gala ticket recipients only, the gala is cancelled, the dates of the gala are changed, or the format of the gala is materially changed (e.g., to an online-only event); or (2) with respect to grand prize winners only, if FAST or Colin Farrell are unable to host or attend, respectively, the grand prize dinner, FAST shall notify the applicable winners as soon as possible and allow such winners to select alternate prizes as provided herein, subject to availability.
Need assistance with event or participant support? Email: email@example.com
Herramientas de la recaudación
- Paso 1. Haz la primera donación
tu primera donación más fácil provendrá de ti. Decide qué cantidad te gustaría contribuir (ninguna cantidad es demasiado pequeña) y deja un comentario especial para tu ser querido con SA en su página CAN. Recuerda, es más fácil preguntarles a los demás si tú ya has donado.
- Paso 2. Sé personal
Tú y tu familia son la razón más poderosa por la que alguien contribuiría a FAST. Los donantes están motivados por la pasión por una causa o la compasión por las personas que han llegado a conocer.
Comparte por qué la donación hará posible encontrar una cura. Los científicos de FAST saben exactamente qué causa el síndrome de Angelman. Han curado los síntomas del trastorno en ratones utilizando múltiples estrategias. Una cura ya no es una cuestión de si, sino de cuándo. Para incorporar tratamientos y terapias significativas en los ensayos clínicos en humanos, necesitamos el apoyo de nuestros familiares y amigos para ayudarnos a recaudar 1 millón de euros. Lo único que se interpone entre las personas con síndrome de Angelman y los tratamientos que cambian la vida es el apoyo financiero para nuestros científicos.
- Paso 3. Comunícate, pide.
No puedes recaudar dinero si no lo pides. Todos los días la gente hace cambios sustanciales y cada euro cuenta. Empieza por hacer una lista de las personas, empresas y organizaciones que conoces y descubre si desean contribuir de alguna manera o no. No te desanimes si están atados a otro compromiso.
- Paso 4. Sé directo.
Cuando hagas una pregunta, sé directo. Dirígelos a la URL de tu página CAN o al sitio web de FAST para que sepan cómo contribuir.
Sé directo y sugiere una cantidad. Es más probable que las personas den cuando saben lo que se espera de ellas y no tienen miedo de pedir demasiado, se ajustarán a sí mismas. Descubrirás que muchas personas quieren ayudarte. Cuando pidas donaciones, estate tranquilo. Muestra tu entusiasmo y sé auténtico. Lo harás mejor con el estilo de solicitud que refleje tu personalidad.
- Paso 5. Agradéceles y mantenlos actualizados.
Recuerda agradecer a tus donantes y luego aprovecha la oportunidad para brindarles más información. Si envías una tarjeta, infórmales del progreso que está haciendo tu ser querido, o de cualquier noticia sobre la investigación de SA, y luego dirígelos al sitio web de FAST y a la página de Facebook nuevamente para que puedan seguir el progreso de FAST ellos mismos.
- Paso 6. Repite.
Estamos brindando tratamientos que cambian la vida de las personas con síndrome de Angelman para que puedan hablar, caminar, dormir y vivir sin convulsiones. Es una tarea gigantesca que requerirá esfuerzos del mismo tamaño. Continuar. Si algo funcionó bien, hazlo de nuevo y mejóralo. Si algo no salió como esperabas, prueba con otra cosa. Tienes una razón convincente para perseverar y la gente lo entenderá. Usa tu pasión para despertar eso en las personas que te rodean. Quedarás asombrado.
Una de las formas más inteligentes de aumentar tu donación a FAST es a través de un Programa de donaciones complementarias corporativas. Muchas empresas y algunas personas igualarán tu donación euro a euro, lo que duplica tu poder de donación caritativa. Algunos coinciden aún más.
- Paso 7. Diviértete.
Estamos aquí para apoyarte y animarte. Gracias por no ser un espectador en el camino para curar el SA. Tienes oportunidades de ganar premios e incentivos a través de nuestro Reto Comunitario CAN, haz clic aquí para obtener más información. Además, esperamos celebrarlo en la FAST Summit & Gala anual.
Recursos de utilidad
- Cure Angelman Now