February is Rare Disease Month. February 15th is International Angelman Day, a day dedicated to raising awareness and funding for Angelman Syndrome.
The purpose of this day is to:
- Raise awareness worldwide of the condition
- Mobilize people to action & encourage fundraising for the individual organisation in their country
- Promote research and educational resources in the organisation’s own country
- Remember those people with Angelman Syndrome who are no longer with us
A common thread within the FAST community has been to come together in local communities to commemorate the day with other families over a meal. Hence, the concept of feASt was born!
The idea is to arrange an event, it can be anything from a cupcake stand, morning tea, a casual backyard affair or a formal sit down dinner. Follow our guidelines to assist in making your feASt a meal to remember.
On February 20, our friends at Vivint will host a very special IAD dinner feASt event at their Gym in Provo Utah.
Date: Saturday, February 20th
Time: 6:00 pm
Location: Vivint Gym
4931 N. 300 W.
Provo, UT 84601
Food: Italian Feast
Niagara Falls turn Blue!
Feb 15, 10pm EST
Feb. 15th we have about 10 Chili’s locations that are donating 10-15% if you bring in a flyer.
Feb. 17th Bricktown Brewery in Shawnee doing the same as Chili’s.
Feb. 18th is a proclamation reading and bridge lighting.
Contact:Kara Caldwell, kara_beth0221@yahoo.com for more information.
Join us on Feb 21st, 2016 at Camp Pendleton in So Cal for a feASt event to benefit FAST from 1-4pm.
Nacho Bar $ Drink provided.
Adults $15, Kids $10
Hosted by: Angelman Breakfast Club
For more information, email Desiree Rizzo at des4579@icloud.com
Jeans Day Fundraiser at ANBTX Insurance Services
Dallas, TX to benefit IAD and FAST.
Contact: Christine Smiley, christine.smiley@anbtxinsurance.com